Step Up for Dementia Research

Latest news and research outcomes

Category: Volunteer stories

Meet Ron Sinclair

Monday, July 15th, 2019

Ron has been involved in advocating for Australians impacted by dementia for over 20 years.  He was the inaugural chair of the first national consumer advisory committee, and the consumer dementia research network established in 2010. Both Ron’s parents passed away with dementia, as well as his first wife, Diana, 13 years ago.  He explains […]

Meet Eileen Taylor

Friday, May 3rd, 2019

Eileen Taylor is a wife of fifty years, a mother to two sons and a toy poodle, and a grandmother to five. Eileen was a counsellor before she retired shortly after learning, at aged 59 years, that she has the gene for Alzheimer’s disease. Eileen describes living with dementia as having “my good days and […]

Meet Jane Thompson

Monday, March 11th, 2019

The Dementia Experience should not be so Hard Jane Thompson’s husband, Alan Newsome, was diagnosed with Alzheimer’s disease when she was in her early fifties and he was 69; their son was in his last year of school. Alan died within four years of the diagnosis. Jane describes the whole experience as exceptionally challenging. “It […]

Meet Danijela Hlis

Monday, February 18th, 2019

Danijela has dedicated her last ten years to supporting people living with dementia and of culturally and linguistically diverse backgrounds.  Fluent in French, English, Slovenian and Italian, “I see the sparkle in their eyes when I speak to them in their mother tongue”, she says. Painful Memories Forgotten Born in Slovenia (then Yugoslavia) 69 years […]

Meet Mabel Cheng

Wednesday, February 6th, 2019

Mabel’s mother developed vascular dementia after a significant stroke, and a couple of years later her father developed Alzheimer’s disease. Both of her parents passed away within several months of each other. She describes the final years with them as being like, “life is on hold…that you can’t really go on holiday or too far […]

Meet Michael Shirley

Wednesday, February 6th, 2019

Michael’s Motivation to Find a Cure for His Wife’s Dementia Michael Shirley, once a children’s book publisher and owner of several childcare centres, retired early to care for his wife Bronwyn.  After she was diagnosed with dementia two years ago, he recalls the money and hours he spent buying and reading American medical texts on […]

Meet Dennis Frost

Wednesday, January 30th, 2019

Dennis Frost recalls feeling happy when he received his diagnosis of frontotemporal dementia six years ago, aged 59 years. “I finally had an explanation for things that were occurring” he says.   He adds that his son’s reaction was one of concern; to him his father had just been given a terminal illness.  Dennis says “the […]

Imelda Gilmore is a member of the StepUp for Dementia Research Public Involvement Panel

Meet Imelda Gilmore

Tuesday, January 29th, 2019

Imelda is an active dementia advocate, who speaks often – in the media, at conferences and universities – about caring for a loved one living with dementia. She also volunteers in two aged care facilities and runs a support group for people and their families living with younger-onset dementia – dementia diagnosed in people under […]

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